Chapter Nineteen: Disconnected
Dad was late for work. By the time I got up, Mum had already had some kind of meltdown this morning, I don’t even know what it was, but it made him late. I was having breakfast when Dad passed his phone to her and asked her to ring in work to let them know that he was on his way.
She took the phone and put it to her ear, ‘Hello,’ she said, ‘Hello. Hello.’ It was just like the last time when I found her talking into a dead phone.
‘Mum, you need to dial the number. Here let me do it for you.’
I got up from my seat and dad shouted at me, proper sharp. ‘No. Let Mum do it.’
‘Yes, I can do it?’ Mum said in this weird voice. ‘Well you just do it like this, and you do this like this.’ She had turned the phone upside down and she pressed the screen, it’s not a touch phone, my dad’s still a caveman, and then she put it to her ear and said, hello, again.’ She just kept saying, hello, over and over and I couldn’t go to her because Dad had his hand out to the side warning me not to because he wanted to see what she would do. But she’d shocked him because of how bad she is, and his hand had stuck there. And he’d stuck there with his mouth a little bit open. One of them was acting mental and the other one looked mental. And I was stuck there, both of us just watching Mum having no idea how to use a telephone. I wanted to laugh because Mum said that if she does something mad we have to laugh at it. I tried it out, but the sound wasn’t laughing. It just isn’t funny.
‘Not to worry love,’ he said, taking the phone from Mum. He’d come out of his trance and she’d taken the phone away from her ear. She held it in her hand now, she’d forgotten what it was for and it was just there, more in the room than she was, at least when she was saying hello into it, it was better. You do say speak into phones.
Dad passed her the newspaper, already opened to the telly guide. ‘Just have a look in there, will you love, and tell me what time Coronation Street’s on, please.’
She smiled and turned the newspaper upside down, ‘Well, you know, It’s Corrie, isn’t it?’ she said this as if Dad had asked a completely different question altogether. She didn’t even look at the paper, she just rested her arms on it. ‘You’ve got Annie Walker and Stan and Hilda and Eddie, the bin man. I don’t like him. He always looks dirty. I like Benny. He’s out of Crossroads. I like Benny. Do you like—?’ And then she tailed off, right in the middle of talking. She lifted her head up, but didn’t look at either of us. She wasn’t staring out of the window, or anything, she just had this really stupid expression on her face. It scared me. Suddenly I knew what she was going to look like all the time. It was a blankness, as though she was looking at something really pretty. And a little smile, a horrible little smile that made her look so young, but at the same time was creepy, you know? It was like; wherever she was, it wasn’t in our kitchen. She’d found somewhere better to be. Maybe she was with another daughter, a better one. One that she wouldn’t have gone mad with, because that daughter was good enough to stop her from going insane.
I went to school and I was sad. Sal was still talking about babies and I promised her that she can push him, when he comes. She asks me every morning now, if my mum threw up today and then she fires a load of names at me. I didn’t want to talk about babies I wanted to talk about my mum. I tried, but when I started, I knew that Sal couldn’t help me. She’s just a kid, like me. She hasn’t got any answers. Maybe there aren’t any and I’m on my own, as lost as Mum is. She knew that I’m sad and she said that I’m just having new baby jitters, like a bride on the day that she gets married. She told me that I’m worried that my parents won’t love me as much when the baby comes. And I wanted to go back in time two months. Because she was right, that is exactly what I was feeling…then. I can’t believe that I thought that she didn’t love me, anymore. If only we could go back to then. Feeling unloved is nothing. Feeling unloved is one tiny little conversation and a few tears, sitting at that (B-bomb, the one where you’re bleeding, not the bad one) dining room table. She’d have told me not to be so silly. I’d have snotted into a tissue and we’d have all gone back to normal. Normal. The word that doesn’t exist anymore.
She used to go on and on about making the right choices for which classes to take next year when I do my selection for GCSE. ‘It’s so important, Katie. I know Sal’s going to go for Social Studies, what’s that when it’s at home? It’s not maths it’s not a science, it’s not going to get you into university, is it? Don’t be a sheep; don’t take the easy way out just to be with your friends. See the bigger picture. When they’re working in pubs, you could be a doctor, or a vet, you like animals. These GCSE results are going to govern the rest of your life, my darling’
No, I think dementia is going to govern the rest of my life. When I get them, she won’t even care about my results. Dad will take me to Salvo’s for a posh meal and either, Mum won’t be there at all, or, she’ll be wearing a bib, in public.
At least Sal’s still got a dad; my mum will be like a zombie by then. My life will be an old re-run of Day of the Living Dead.
At school I got sadder and sadder and sadder. This morning Dad had said that he couldn’t leave Mum like that and had rung in to get the day off. He was so sad. He said the time has come for him to leave work. He said that he thought he’d have more time, but she won’t be able to be left alone soon. I want to take a gap year from school. It’s important. Every moment that I have with my real Mum, before she becomes a stranger, is important. Why can’t they see that? I decided to go and see Miss Chew. She was so kind that other time, she might let me go home and stay there until my mum is just a walking shell. And then I’ll come back. And I’ll go through the humiliation of sitting in a class of kids who are all twelve months younger. I’ll drop a whole year, because it won’t matter then. Nothing will.
Last lesson Miss Chew had a free period. How is that fair, that teacher’s get free periods. We don’t. I knocked on the staff room door and Mr Hunter was standing there. I asked for Miss Chew and he put his head back in to call her for me, before telling me to tuck my shirt in, he stalked off down the corridor. Miss Chew came to the door and I burst into tears, and I flung myself into her arms, because she’s all fat and round and comfy. I just sobbed and she led me into the staff room. No kids are ever allowed in there. They have television and everything. She sat me down and I told her everything, everything, and when I finished, she was crying too. And I’ve never seen a teacher cry before, well not since Mr cross went down on one knee and proposed to Miss Singleton in the middle of assembly. She cried, but that was different. They are the two PE teachers; can you imagine how fit their children will be? She kept saying, ‘You poor child,’ and, ‘Your poor mother.’ But she wouldn’t let me go home. She said that she has a duty of care and that she couldn’t send me home unless a responsible adult was there. I told her that my mum was at home—and then she changed the subject quick and made me tea.
Comments
jolono | June 29, 2012 - 09:03
Sooz, this is such a hard subject to write about because let's face it, it's so sad! But you always seem to get round it by putting humour around each part. The bit about the P.E teachers kids being so fit made me laugh, yet a sentence before I had a lump in my throat!
Keep it coming.
Sooz006 | June 29, 2012 - 09:44
Thanks J, I just hope we're not getting too much repetition. Mum does something mental, family reacts to it same, same, same ... but then, that's what the book's about so I suppose it's inevitable. Glad you're still liking it and that it's amusing and well as being down stuff.
Sooz006 | June 29, 2012 - 09:45
Thanks for the cherry ed's, appreciated.
Edenfalls | June 29, 2012 - 11:31
Hi Sooz, not been on the site for a few weeks so catching up has been hard work this morning.
I've now read all of these and I have to say a big well done. I have some experience with what you are writing, a close friend who was only 55 went down rapidly with dementia, in less than a year he had no idea who we were, it was very sad to witness.
But as Jolono quite rightly said, the humour in this sad story really brings the whole thing to life. Writing it in a teenagers eyes as well was another good choice as she will also have lots more things on her mind, if you had written it from an adults perspective it could have become very sad indeed.
A really good read and looking forward to more.
Sooz006 | June 29, 2012 - 11:47
Thank you Eden. You may be able to help me, actually. I've dealt with many dementia cases over the years but they have all been well established. I've rarely come in at day one. My question is: Clearly Annie has advanced rapidly by this section. I would still like to have times of lucidity, but I'm not sure if after this one I've gone too far now to take her back again. I want to know, if she can go from this level of confusion back to having, some, normal mother/daughter episodes, or if that's it now ... downhill all the way?
I am very sorry to hear about your friend, it's horrible and one of the cruelest conditions to have to watch.
Thank you for reading and commenting. the encouragement is wonderful, I'm out of my comfort zone with this one and the other book that I'm working on.
Edenfalls | June 29, 2012 - 11:57
Hi Sooz, in my friends case we thought at first that he was winding us up ( he was always doing that), he'd forget our names, forget to turn up at an agreed place and time and when you asked him about it later he'd just shrug his shoulders as if he didn't care.
One day he'd open the door to you and not know who you were, the next day he'd call you up to see how you were, it was quite weird. But after one particuarly bad day there was no going back, he went back to live with his elderly parents and when we went to visit him after that he would just sit there and stare or smile as if he was a million miles away, which he was really.He passed away last year.
Denzella | June 29, 2012 - 21:02
Sooz another great chapter. Funnily enough I found myself sitting next to a chap I know from dog training whose wife has Alzeimers and she too had that vacant half smile.
My niece's husband too has early onset Alzeimers and when she told him to go round to the passenger side of their motorhome he was lost as he went straight past.
Just before she died my Mum suffered from Dementia and when a nurse said 'Your daughter, Moya, is here.' She answered 'What my Moya?' Even though I was stood there in front of her. Funny, she could remember my name but not me.
Anyway, another sensitively written piece and I predict a whole orchard of cherries will be coming your way with this story.
MOya
Sooz006 | June 30, 2012 - 16:18
Thank you Moya, it is horrible and I'm trying hard to write it sensitively so as not to hurt anybody with suffering loved ones. I'm drawing a lot from clients that I've had in the past, and hope that I'm keeping it real.
Though this last couple of weeks, the also ran that I was working on after ploughing out a chapter of Katie, seems to be making a sprint for the finish line and has taken the lead, but it's still early days for both of them and either one could sprint ahead or fall at a fence, I can't say that I'm buzzing with either one of them... but we'll see. Where the hell have all these horsey metaphors come from? I need to lie down.
Thank you, again if you spot anything that doesn't ring true or you think may be offensive to anybody, please let me know.
Sooz006 | June 30, 2012 - 16:24
Thank you Eden, that was very helpful and I tend to agree, I think I've taken her too far now to have her 'completely normal' again, but I can still have flashes. My plan was to have Annie write a diary for Kate, a kind of diary within a diary so that for awhile we had two perspectives, but I think I've blown that. I didn't expect her to go downhill quite so fast and it's rapid from here on in.
So... backtracking, changing direction, asses and adapt, I think I'll have her writing one entry that Kate later finds. And on edit, I'll see if I can add some bits and nibbles to slow the whole thing down. My timeline got mixed up with the baby and the illness attacking at once.
Thank you for coming back to me, appreciated.