Bella the Brain Pain
By jeand
- 2081 reads
Bella, the Brain Pain
Last Thursday was Effie’s first birthday. We celebrated with a glass of tonic - no alcohol while on antibiotics She’s done pretty well this year, I guess it was a steep learning curve for both of us.
But now, there is a new girl in my body parts - Bella. She is only about 35 mm in diameter, and is pretty well round, and looks very white compared to her pinky grey surroundings. (Barby was 60 mm) You might have guessed from her name that she resides in my Cerebellum a part of the brain towards the back, near the spinal cord. My cerebellum itself looks like a sort of thick butterfly - with Bella situated almost in the middle near the top..
It was fun looking through the layers of my brain. The outside level was almost like a cartoon of a raccoon - huge black eye sockets and the other identifiable bits of the face. Then after about 7 layers through, slice by slice, we got to the Cerebellum. Bella doesn’t look all that much of a threat. But she must be pretty sturdy stuff because, probably during the surgery, over a year ago now, somehow she made her way from my colon along either the blood stream or the lymph system to about as far away as anything could get. The professor answered our question about whether she could be a primary cancer by saying that the team of all eminent surgeons all thought it was a colon metastasis. And I guess she has a point.
When I heard about my new cancer, I read all I could about it on the internet, as you do, and came to the wrong conclusion that the treatment I am getting called stereotactic radiotherapy (or cyber knife surgery) was going to zap it dead. And thought that was a good result. But the Prof told us that it wouldn’t be blitzed, only put to sleep, to wake again, with all its potential damage still in tact, in maybe a year or so.
Tomorrow I go to have another MRI scan (magnetic resonance imaging) which is very noisy, but they need to see if Bella has grown since the last oe was done a month ago.
Then on Tuesday, they will make me a mask which will hold my head absolutely still for the 40 minutes or so of the radiation treatment The mask is made of soft plastic with holes in it, and they warm it up and mould it to your face and back of head, and then they can screw it to the base of the bed I will be lying on, while the various radiation beams go at it one by one. I seem to think there are seven or so of them, but they take it in turns instead of all concentrating on poor little Bella all at once.
And Monday the 8th will be the big day. So sleep well and long, little Bella
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Comments
You write with extraordinary
You write with extraordinary strength, Jean. It felt like I was inside your head, the detail you describe. Cancer seems to be a dogged foe. Well my money's on you to be the winner in this fight. As ever, an amazing account to read even if it is laced with latent peril. Keep us posted. So many people care about you. Take care. Paul x
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Hi Jean
Hi Jean
My hope is that Bella will have a permanent long sleep.
Once again a fascinating explanation of what is to happen. It all sounds so scary and futuristic. But once again your down to earth and practical explanation of the procedure, plus your usual touch of humour makes it a great read.
Thanks Jean. Thoughts as always with you.
Lindyx
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I will join you in wishing a
I will join you in wishing a VERY long sleep for Bella, and a successful MRI and weird mask making Jean - all fingers crossed for you
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Glad you are feeling
Glad you are feeling reasonably well for the ongoing appointments and sagas, Jean. May you know the Spirit's comfort and upholding.
I was thinking of Effie the other day in hearing of a rural hospital overseas where home-made bags had had to be used with much difficulty. Then they received a donation of proper bags. We are so used to so much being readily available. Rhiannon
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I think it was plastic bags,
I think it was plastic bags, but even so, very difficult! Rhiannon
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Dear Jean,
Dear Jean,
Sorry I can't find the words to say, I can only echo all the above comments that say exactly how I feel for you.
Thinking of you at this time, and take care.
Jenny.
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Certainly, Bella deserves a
Certainly, Bella deserves a very long hibernation after her journey. Let's hope she's completely exhausted and really can't be bothered to wake up again.
Yes, do show us a picture of the mask. I can't help but have an image of it as that ski mask from one of the horror films (Friday 13th?) - I've never seen the film but it seems to be part of the culture now. I'm sure it's not like that at all!
Thanks for keeping us updated. I hope the steroids help.
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lots of science and bits of
lots of science and bits of bella. hopefully you can switch off for long enough to feel more human. good luck.
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This Anniversary edition in
This Anniversary edition in the brilliantly written series by Jeand, full of her wonderful humour, resilience of spirit, and increasing medical know-how, is Pick of the Day! Please do share and retweet if you can
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Congratulations Jean! As you
Congratulations Jean! As you can see, we're all rooting for a long sleep for Bella!
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Congratulations, this is our Story of the Week 5th May 2023
Congratulations. Thank you for your unflinching honesty and humour.
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I do hope Bella takes agood
I do hope Bella takes agood long rest. Yours is a wonderful spirit, jeand. Brilliant writing.
Rich
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