Chemo 5
By jeand
- 1332 reads
I had an email from my brother-in-law today. It was headed “Sympathy”. It rather startled me because he is a cancer epidemiologist and statistician. Maybe he knows more than I do about my case.
I did sort of feel in need of sympathy earlier this week. I was given a bit more of the poison than in the previous 6 weeks. My original dose was 350 somethings of 5FU, and now I am on 400. So that means I went from a 50 to a 63 % of the total dose allowed for my weight.
Doesn’t sound like all that much does it? But it sure packed a punch. I had nausea, dizziness, mouth ulcers which really hurt, as well as much more of the usual fatigue.
But it is gone today, except for the tiredness. I was thinking I might ask them to put me back into the comfort zone - but I guess it has to hurt to work.
I was thinking about me saying my stoma was sort of like an unborn baby (not really). So then my stoma bags, which are pocket shaped and grey, are sort of like nappies. And I have powder to put on Effie, after she has been cleaned. Not that I think a form of stoma bag would work on a baby, or a disposable nappy would work on me.
With the extra bit of poison, Effie gave her first interpretation of diarrhoea. It is liking having a water tap that won’t turn off. Luckily I have medication that sorts it out, and marshmallows and jelly babies help too.
I have an extra trip to the hospital this week - my check on my eyes - because of the right one which didn’t close after the Bell’s palsy. I thought it was doing OK now, but just maybe the poison, which prefers the taste of new cells - has been taking bits out of my facial nerve tissue, which has had to regrow after the Bell’s Palsy killed it off. I think my smile is a bit crookeder again too. But I am still smiling, so that is OK.
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Comments
Good that you are still
Good that you are still smiling, Jean. Keep fighting the good fight and take care of yourself. Paul x
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Keep smiling. Keep writing.
Keep smiling. Keep writing. Jelly babies always helps.
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Jean, you've been through so
Jean, you've been through so much and yet manage to keep your sense of humour. Long live the Jelly babies and marshmallows, they sound like a real comfort to you.
I hope life starts treating you better. Take care.
Jenny.
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Very glad you're still
Very glad you're still smiling, and interesting to know that marshmallows are a cure for a dodgy stomach - had no idea!
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Hi Jean
Hi Jean
Thanks for keeping us up to date on your progress. Jelly babies and marshmallows sound like a nice treat. Have you tried marshmallows on hot chocolate? It does sound a step too far for me.
I hope that the 'poison' is affecting the cancer cells as well as other bits of you.
Your smile and positive approach gives comfort to a lot of people.
Take care
Lindyx
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Ah, great to hear that from
Ah, great to hear that from the eye doctor. I like to think of you still smiling, Jean, and being strong and even mischievous enough to turn your experiences into such a wonderful journal. Hooray for jelly babies!
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We've been away a week, with
We've been away a week, with virtually no Wifi, and only in one place sometime! We don't have smartphones. Still, it is a change! I presume you've had anorther rather heavy dose by now, and praying you'll be able to wait for the symptoms to quieten down.
We had a fire alarm at 4 am one day - not many of us affected, but it took awhile to sort out, and then I realied it was the beginning of our anniversary! It was a church houseparty we had joined and really good fellowship and grounds in the school location. But a bit of trouble the evening the storm came after the heatwave too! much love, Rhiannon
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